It was New Years Eve 2019. I had been in the hospital all day, with people coughing all around me, and a body that was numb from the waist down. When the doctor finally saw me and said, “I'm sorry Miss John, you have multiple sclerosis." I collapsed. Even though I had already heard it could be a possibility, to officially hear the diagnosis was too much. I had a new job, a two-year-old, all these redonculous wedding plans with my partner. And now I had a body that was fightin

I remember being in the hospital and waiting for the results. We pretty much knew it was multiple sclerosis and, I was sobbing. My family wanted to make me feel better but, they didn’t know what to do and were freaking out. The nurse made everyone leave the room. She sat on the bed next to me and grabbed my hand. I can't remember if she was fixing my IV or doing something but, she was definitely making a statement. She said, “What if it is MS? What are you going to do about i

"I think MS has made me brave. It has made me strong. I still think back to when I grew up in the countryside. You know I lived a regular life with my mom, dad, and brother. I loved sweets cake. That was my thing, sugar, sugar, sugar. When I was diagnosed with multiple sclerosis, I thought everyone who had MS ended up in wheelchairs and that I would be a cripple. Now ten years later, I know each diagnosis is so different. Mine started with my eyesight, and now one leg has wea

When I look back, life felt normal. I did the typical mom things. I ran kids to sports. I worked at the school. In my spare time, I wrote novels. When my feet started to tingle, I told myself it must be a pinched nerve. But, the tingling turned into numbness that spread up my legs, into my hands, and then to my face. I told myself to remain calm. But when I could no longer swallow without choking, my calm turned to panic. I walked into the ER that night, and a few hours later

It is a relapse? Is it a pseudo flair? Who the heck knows. So frustrating I can't get help faster and have to suffer through the pain of it all. Here are my in the moment, texts and video's i sent to my Doc's and my friend. Sometimes the unfiltered un- edited version of things are the hardest to see but the most honest in what's happening.