Enjoy this true story from the life of Michael Reading--a toddler born with neonatal marfans syndrome. Michael was born with a rare life-threatening genetic condition called Neonatal Marfans (a separate entity from traditional marfans) which weakens all connective tissue in his body, most notably the heart, lungs, eyes, blood vessels, bones and joints. At thirty months he'd already had three open-heart surgeries, lens removal surgery, hernia surgery, and has a team of 21 spec

Stuck Like a Duck, Bonk what a Tonk and Te Amo, Daddy. Journal Entry by Reading Fam — January 24, 2021 Beautiful Friends, Greetings. I am happy to report that Michael is doing GREAT. He’s getting stronger. His sentences are longer. And his rhyming is azonger. Okay, zonger isn’t actually a word. But it fits with some of the amazing rhymes Michael has been making up. Art of Rhyming The past week Michael has acquired the art of rhyming. By himself. Not just repeating sent