Enjoy this true story from the life of Michael Reading--a toddler born with neonatal marfans syndrome.
Michael was born with a rare life-threatening genetic condition called Neonatal Marfans (a separate entity from traditional marfans) which weakens all connective tissue in his body, most notably the heart, lungs, eyes, blood vessels, bones and joints. At thirty months he'd already had three open-heart surgeries, lens removal surgery, hernia surgery, and has a team of 21 specialists. Newly discovered heart-valve failure indicates the need for a fourth open-heart surgery. Even with all his physical struggles, Michael lives a life full of laughter and miracles. When Michael was only eighteen months his mom, Emily, (my little sister) posted about his new found love of rhyming--not just repeating rhymes he'd heard, but formulating original compositions--I knew the rhymes needed to be put into a children's book for him. A few hours later, Michael Rhymes all the Time, was formed. We hope you enjoy this true story! Made with love by his Auntie Lulu. AKA, Leisa Wallace